Public Comments

DREDF Comments on CMS Request for Information on Medicare Advantage Plans

August 31, 2022
DREDF submitted comments in response to CMS request for information on various aspects of care delivery provided by Medicare Advantage plans. We called for special attention to be given to the potential impact of disability bias in algorithms and AI being used in healthcare and services decision-making and recommended steps CMS should take to ensure that these biases are identified and corrected. The goal is to increase equity and fairness and avoid discrimination and inappropriate care decisions for disabled Medicare Advantage beneficiaries. Although research is limited, some scholars have observed that when algorithmic and AI development and testing does not consider the potential for disability bias, certain inequitable outcomes could occur. Moreover, other specific disability status information is not measured or recorded directly within electronic health records (EHRs), yet it is likely that disabled people have a pattern of healthcare services use that might display unique variation based on disability type and might be affected by intersectional and demographic factors including race, ethnicity, gender identity, and age. Thus, any risk assessment algorithm should be designed with explicit attention to disability, not as an outlier or source of skew, but as a common demographic characteristic—an aspect of the human condition. [...]

DREDF Opposes HIV Criminalization

March 29, 2022
DREDF opposes the criminalization of people based on their HIV-positive status. In addition to being harmful to public health, laws and prosecution targeting HIV-positive people constitute discrimination on the basis of disability. The Americans with Disabilities Act (ADA) prohibits disability discrimination by state and local governments. [...]

DREDF and the Community Living Policy Center submit comments on CMS Proposed Rules on Integration for People Dually Enrolled in Medicare & Medicaid

March 7, 2022
DREDF, in collaboration with the Community Living Policy Center at the Lurie Institute for Disability Policy at Brandeis University submitted comments to the Centers for Medicare & Medicaid Services (CMS) on proposed changes to regulation of Dual-Eligible Special Needs Plans (D-SNPs) as part of a larger rulemaking on Medicare Part C & D. We support the direction of CMS’s proposals and appreciate the efforts to tighten and clarify requirements and the focus on enrollee experience and needs. Our comments primarily explore areas where we believe that CMS could include further specificity in the regulations such as advisory committees, network adequacy, durable medical equipment, and home health care. These regulations are important given the rapid growth of D-SNPs across the country. [...]

DREDF and Bazelon submit Comments on Proposed Federal Rule Updating ACA Health Exchanges and Benefits

January 27, 2022
DREDF and our colleagues at the Bazelon Center for Mental Health Law commented on all these aspects of the proposed rule. Non-discriminatory benefit design in healthcare is especially important for people with disabilities, including those with mental health disabilities, who have experienced both obvious and subtle discrimination in insurance for decades such as visit limits, "special" co-pays, and outright failure to cover services and items that are medically necessary for mostly people with disabilities. In our comments, we recommend that plan spending on improving health equity for people with disabilities, such as by helping providers to get accessible examination equipment, could and should be considered a quality improvement that doesn't count toward an insurer's profits. We also pointed out how telehealth has been inaccessible for people who are Deaf or who have other communications disabilities. Finally, we pushed for better demographic data collection on disability in healthcare overall. [...}

DREDF Urges the Biden Administration to Rescind Georgia’s Section 1332 Waiver

January 12, 2022
On January 7, 2022, DREDF provided comment on Georgia's approved Section 1332 Waiver, which permits the State to exit HealthCare.gov—a central source of enrollment and enrollment assistance for the roughly 500,000 Georgians who enroll in private health plans or Medicaid through the platform. DREDF has serious concerns that this waiver does not meet the requirements of Section 1332 of the Affordable Care Act, as it will revert Georgia's healthcare enrollment into a system that forces consumers to search among a multitude of private, profit-drive web brokers and insurers in order to find coverage. This fragmented system will create new barriers to enrollment, eliminate neutral navigators, and result in increased enrollment in "junk" plans that do not meet an individual's needs. These harms will be particularly hard felt among Georgians with disabilities. We urge HHS and USDT to immediately rescind the waiver. [...]

DREDF Comments on Medicare Reviews of Inpatient Rehabilitation Facility Admission

October 8, 2021
California will be among 17 states in which the Centers for Medicare and Medicaid Services (CMS) plans to initiate a 5 year project to review all claims submitted for inpatient rehabilitation facility (IRF) services. IRFs provide intensive rehabilitation and care coordination that people may need to recover after a medical event such as a heart attack, a stroke, or a traumatic brain or spinal cord injury. Just as importantly, people with chronic conditions and disabilities may need IRF services to maintain their functional capacity and prevent or slow down functional deterioration experienced over time. A temporary IRF stay can mean a faster and more efficient return to the community. CMS has provided little evidence of the fraud that is cited as justification for the demonstration, and we already know that IRF services can be denied to people with disabilities even when they are of medical benefit, especially people with chronic progressive conditions who are already too often "written off" because they cannot be cured or "fixed." In our comment letter, DREDF opposed gatekeeping measures that stop people with disabilities from getting the care they need to live fully and independently in their communities. [...]

DREDF Comments on Approved TennCare III Demonstration

September 9, 2021
DREDF submitted comments to the U.S. Department of Health and Human Services (“HHS"), urging rescission of HHS’ approved Section 1115 waiver permitting the State of Tennessee to fundamentally alter its Medicaid program, to the detriment of low-income people with disabilities and chronic conditions. The comments explain how the approval was unlawful under the requirements of the Medicaid Act and how it will disproportionately harm disabled enrollees by reducing access to Long-Term Services and Supports (“LTSS”), needed prescription drugs, and retroactive healthcare coverage. [...]

DREDF Supports Discussion Draft of Legislation Making Medicaid Home and Community-Based Services Mandatory

April 27, 2021
Senators Hassan, Brown and Casey, and Representative Dingell, released a discussion draft of the Home and Community-Based Services Access Act (HAA) in mid-March, seeking broad stakeholder comment. The federal HAA is in an early form but addresses a long-sought goal of the disability community to require states to offer home and community-based services and not only institutional nursing home care under Medicaid. This requirement would help eliminate the waiting lists and patchwork of eligibility and services that Medicaid beneficiaries with long-term care needs currently have to navigate. The HAA also tries to establish living wages and working conditions for the HCBS workforce that will help ensure stable HCBS for all eligible Medicaid enrollees who want HCBS. DREDF worked with the Consortium of Citizens for Disabilities to submit a detailed set of joint comments and also a shorter DREDF set of specific additional comments.[...]

DREDF and LAAW Urge the California Bar to Protect Testing Accommodations for Bar Applicants

March 12, 2021
DREDF joined Legal Aid at Work in writing a comment to the State Bar of California opposing a revision to State Bar Rule 4.90. The revision would give bar applicants less time to appeal accommodation denials and less opportunity to have accommodation denials reviewed. DREDF and LAAW described the harmful impact this would have on bar applicants with disabilities, imposing more difficulty in an already frustrating process. The comment further urges the State Bar to instead adopt meaningful reforms to its testing accommodation process, adhering to guidance from the Department of Justice which has already been implemented by the Law School Admissions Council. [...]