March 7, 2022
DREDF, in collaboration with the Community Living Policy Center at the Lurie Institute for Disability Policy at Brandeis University submitted comments to the Centers for Medicare & Medicaid Services (CMS) on proposed changes to regulation of Dual-Eligible Special Needs Plans (D-SNPs) as part of a larger rulemaking on Medicare Part C & D. We support the direction of CMS’s proposals and appreciate the efforts to tighten and clarify requirements and the focus on enrollee experience and needs. Our comments primarily explore areas where we believe that CMS could include further specificity in the regulations such as advisory committees, network adequacy, durable medical equipment, and home health care. These regulations are important given the rapid growth of D-SNPs across the country. [...]
Healthcare Access
DREDF and Bazelon submit Comments on Proposed Federal Rule Updating ACA Health Exchanges and Benefits
January 27, 2022
DREDF and our colleagues at the Bazelon Center for Mental Health Law commented on all these aspects of the proposed rule. Non-discriminatory benefit design in healthcare is especially important for people with disabilities, including those with mental health disabilities, who have experienced both obvious and subtle discrimination in insurance for decades such as visit limits, "special" co-pays, and outright failure to cover services and items that are medically necessary for mostly people with disabilities. In our comments, we recommend that plan spending on improving health equity for people with disabilities, such as by helping providers to get accessible examination equipment, could and should be considered a quality improvement that doesn't count toward an insurer's profits. We also pointed out how telehealth has been inaccessible for people who are Deaf or who have other communications disabilities. Finally, we pushed for better demographic data collection on disability in healthcare overall. [...}
Letter From the Disability Community to CDC Director Rochelle Walensky
January 13, 2022
Dear Director Walensky,
The undersigned organizations write in response to your comments on Friday, January 7th, 2022.
Together we represent millions of people with disabilities, patients, and people with chronic illnesses across the United States, and we are extremely concerned by your comments. People with disabilities and pre-existing conditions have been disproportionately killed by COVID-19. This is particularly true for those who live in congregate settings. Each of these deaths is a devastating loss to families, friends and to our broader communities. Your comments about the results of a research study referred to the fact that a disproportionate number of deaths due to COVID-19 occurred among "people who were unwell to begin with" as "encouraging news". Weunderstand you were speaking about a research study and that segments of your remarks were cut by ABC from the aired interview. Your full remarks were subsequently released, and our concerns remain. [...]
DREDF Urges the Biden Administration to Rescind Georgia’s Section 1332 Waiver
January 12, 2022
On January 7, 2022, DREDF provided comment on Georgia's approved Section 1332 Waiver, which permits the State to exit HealthCare.gov—a central source of enrollment and enrollment assistance for the roughly 500,000 Georgians who enroll in private health plans or Medicaid through the platform. DREDF has serious concerns that this waiver does not meet the requirements of Section 1332 of the Affordable Care Act, as it will revert Georgia's healthcare enrollment into a system that forces consumers to search among a multitude of private, profit-drive web brokers and insurers in order to find coverage. This fragmented system will create new barriers to enrollment, eliminate neutral navigators, and result in increased enrollment in "junk" plans that do not meet an individual's needs. These harms will be particularly hard felt among Georgians with disabilities. We urge HHS and USDT to immediately rescind the waiver. [...]
COVID Vaccines for Children with Disabilities with Dr. Noemi Spinazzi
December 13, 2021
Webinar recording of COVID Vaccines for Children with Disabilities with Dr. Noemi Spinazzi.
Pediatrician Noemi Spinazzi, MD is a primary care physician at UCSF Benioff Children's Hospital Oakland and an assistant professor of pediatrics at UCSF. She provides primary care services to hundreds of children with complex care needs and developmental disabilities, and she founded a specialized clinic serving patients with Down syndrome. She is also the director of the developmental and behavioral pediatrics resident rotation at Children's Oakland. [...]
Letter to the Board of Directors of CVS Health
November 1, 2021
Disability and HIV leaders sent an urgent letter to the CVS Board of Directors calling on the pharmaceutical giant to drop its Supreme Court bid to gut disability civil rights in a case called CVS v. Doe. [...]
CVS v. DOE Explained
November 1, 2021
CVS is trying to gut section 504 of the rehabilitation act, a key federal law that protects people with disabilities from discrimination. [...]
DREDF Comments on Medicare Reviews of Inpatient Rehabilitation Facility Admission
October 8, 2021
California will be among 17 states in which the Centers for Medicare and Medicaid Services (CMS) plans to initiate a 5 year project to review all claims submitted for inpatient rehabilitation facility (IRF) services. IRFs provide intensive rehabilitation and care coordination that people may need to recover after a medical event such as a heart attack, a stroke, or a traumatic brain or spinal cord injury. Just as importantly, people with chronic conditions and disabilities may need IRF services to maintain their functional capacity and prevent or slow down functional deterioration experienced over time. A temporary IRF stay can mean a faster and more efficient return to the community. CMS has provided little evidence of the fraud that is cited as justification for the demonstration, and we already know that IRF services can be denied to people with disabilities even when they are of medical benefit, especially people with chronic progressive conditions who are already too often "written off" because they cannot be cured or "fixed." In our comment letter, DREDF opposed gatekeeping measures that stop people with disabilities from getting the care they need to live fully and independently in their communities. [...]
Pharmaceutical Analyses Based on the QALY Violate Disability Nondiscrimination Law
September 21, 2021
Over the past several decades, the debate over the cost of pharmaceuticals and the perceived “value” of certain drug treatments has amplified. In pursuit of cost containment, policymakers have wrestled with the concept of cost-effectiveness and sought measures by which to guide health care payers in their decisionmaking regarding formularies and utilization management. One measure in use by many payers is the Quality-Adjusted Life Year (“QALY”). The QALY is a metric that, in theory, measures the degree to which a drug or therapy extends life and improves quality of life. The QALY is used to develop guidelines on the economic “value” of a given pharmaceutical, which then informs a payer’s decision of whether to cover such drug and, if so, under what terms. Unfortunately, the QALY relies on a set of discriminatory assumptions that devalue life with a disability, disadvantaging people with disabilities seeking to access care based on subjective assessments of quality of life. This paper details how the use of the QALY violates disability nondiscrimination law. [...]
DREDF Comments on Approved TennCare III Demonstration
September 9, 2021
DREDF submitted comments to the U.S. Department of Health and Human Services (“HHS"), urging rescission of HHS’ approved Section 1115 waiver permitting the State of Tennessee to fundamentally alter its Medicaid program, to the detriment of low-income people with disabilities and chronic conditions. The comments explain how the approval was unlawful under the requirements of the Medicaid Act and how it will disproportionately harm disabled enrollees by reducing access to Long-Term Services and Supports (“LTSS”), needed prescription drugs, and retroactive healthcare coverage. [...]
