April 12, 2020
I am weary.
Of calling and emailing. Of educating and advocating. Of meeting and presenting. Of filing complaints. Of not being heard.
It’s not living with a disability that exhausts me. I have learned to live well with spina bifida—even to thrive. I am adept at balancing a career, chronic health issues, community advocacy, and having a life. My support system includes a wonderful husband, family, friends, and colleagues. I have honed my advocacy skills; I know when to take on a battle and when to focus on the war. I have worked to make my community accessible for all, and to be the kind of place I want to grow old in. Life is good. [...]